Brittany Miller first learned of Raising Special Kids shortly after her third daughter Brooke received a diagnosis of Aicardi syndrome, a rare genetic disorder that causes seizures and other medical complications. Brooke also has diagnoses of cerebral palsy, intractable epilepsy, Wolff Parkinson White syndrome, global developmental delays and sensory processing disorder.
When Brooke was transitioning from the Arizona Early Intervention Program (AzEIP) to developmental preschool, Brittany attended an IEP workshop hosted by Raising Special Kids. The knowledge Brittany gained inspired her to join Raising Special Kids as a parent leader, talking to parents of other children with similar diagnoses and presenting her story to medical students and staff.
Additionally, Brittany has served on Family Advisory Committees at Phoenix Children’s Hospital for nine years. She currently chairs the Neurosciences council which works to help improve patient-centered care and serves on the Patient Safety Committee with hospital leaders. She also participates in the Patient Family Faculty, a team of parents that present information to all new hires, residents, nursing staff and others to provide them with parent perspectives.
In 2018, Brittany joined the RSK staff, initially working on the AzEIP central referral team, and then as a Family Support Specialist. In this position, she coaches families through their own journeys. She also oversees Raising Special Kids’ social media presence and assists with fund development.
About 10 years ago, Brittany recognized the importance of connection for parents of children with special healthcare needs and started an active Facebook group, which she still moderates. This helped awaken her passion for using social media to reach families.
Brittany and her husband Ryan have three teen daughters. They live in Queen Creek where Brittany loves to hike, averaging a daily three-mile trek in the nearby San Tan mountains.
“I love my job because it helps me on my own journey as a parent,” Brittany said. “Brooke is sweet and strong and has changed our lives for the better.”