Communication is key.
Chronic illness forms can protect students from penalties for missing substantial school days due to illness. Students can also receive accommodations through Individualized Education Programs (IEPs) or 504 plans, which outline the specific supports or services qualifying students receive in the classroom. These plans help ensure students have equitable access to education despite health challenges and promote collaboration between schools, families, and healthcare providers.
Molly Wright’s son, Mark, has a congenital heart defect. He is now a junior in high school and doesn’t have a chronic illness form on file. Instead, he has a 504 plan, which allows him extra time to make up assignments if he misses school due to appointments or illness. Wright estimates he sees at least four different specialists regularly, and these appointments don’t always fall during school breaks. Managing these medical needs, along with school responsibilities, requires ongoing communication and coordination.
Though the family sometimes receives auto-generated letters from the school about his absences, Wright said the 504 plan has protected him from penalties. She communicates with the school team whenever there’s a concern, ensuring Mark doesn’t fall behind and that his health needs are respected.
Her son also plays sports, which adds another layer of complexity. While his 504 plan doesn’t specifically address accommodations for extracurricular activities, Wright and her son stay in communication with the coaches about his needs. For example, he is on the golf team, and they practiced in August. The coach knows extreme heat can affect his health and checks in with him as needed. He can reduce his practice or playing time if necessary due to his condition.
Now a parent leader with Raising Special Kids, Wright talks to other parents of children with similar conditions. She also serves on advisory councils at Phoenix Children’s Hospital, offering support and advocacy for families facing similar challenges. Through her leadership role, she helps other parents navigate the complexities of medical and educational systems, encouraging them to advocate for their children’s needs.